~~Cystic fibrosis (CF) is a life-threatening genetic disease that primarily affects the lungs and digestive system. An estimated 30,000 children and adults in the United States (70,000 worldwide) have CF. Quick Facts about CF In the United States: About 1,000 new cases of CF are diagnosed each year. More than 75 percent of people with CF are diagnosed by age 2. Nearly half of the CF population is age 18 or older. In people with CF, a defective gene and its protein product cause the body to produce unusually thick, sticky mucus that: Clogs the lungs and leads to life-threatening lung infections. Obstructs the pancreas and stops natural enzymes from helping the body break down food and absorb vital nutrients. In the 1950s, few children with CF lived to attend elementary school. Since then, tremendous progress in understanding and treating CF has led to dramatic improvements in the length and quality of life for those with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
For more information, go to www.cff.org.
Join Us IN 2019
Patrick's year in review
June 15, 2019 Update
6 WEEKS OUT!
The CFF website is live!
Go to the Register or Donate Tab above to register for the event.
The 14th annual golf event will take place on July 27, 2019 at Veteran's Golf Course in Springfield, MA followed by the party at the house at 88 Winwood Circle in Somers, CT.
Please email me at firstname.lastname@example.org with any questions. If you are golfing, please email your foursomes (or let me know if you need to be paired up with someone) so we can keep track of who's coming.
Plans for this year's event are underway. As the name implies, it'll be happening on the Last Saturday in July -- July 27, 2019. We will be following the same format as we have over the past 13 years -- if it ain't broke, don't fix it.
Our son, Patrick, was born with Cystic Fibrosis on May 8, 2006. My wife, Shannin, and I found out about the disease 5 months earlier when doctors noticed something on an ultrasound that made them suspect something was wrong.
Last Saturday in July Golf Event to Beat Cystic Fibrosis