Patrick Charles Burns was born on May 8, 2006.
Several months before he was born, Shannin and I found out that he would be born with Cystic Fibrosis. We immediately reached out to everyone we knew to try and learn whatever we could about the disease. As we heard back from numerous friends and family members, we decided that we needed to start an annual event to show Patrick how much love and support he had in battling this disease. We thought a golf tournament followed by a get together at our house would be the perfect mix of fundraising and spending some quality time with our closest family and friends.
The first tournament and house party took place on July 29, 2006 - Patrick and Shannin made it home from the hospital after one of his hospital stays about an hour before the party started. We had 98 golfers, 130 house guests, and raised $8,183. We found out at the ripe age of 11 weeks that Patrick had an incredible amount of support.
We have held the golf tournament and house party every Last Saturday in July since. We have had approximately 100 golfers and 130 house guests annually, despite a couple thunderstorms, andhave raised a total of $212,523. $198,123 has gone to the Connecticut Chapter of the Cystic Fibrosis Foundation, and $14,400 to the Boomer Esiason Foundation.
It brings tears to my eyes as I write this to think of the shear goodness of the all the people that have been involved in this event since July 29, 2006.
So that is the history of the event, but what is the mission?
The main mission of the Last Saturday in July is to show Patrick how much love and support he has from all over the world to defeat Cystic Fibrosis.
The secondary mission is to raise as much money as we can to help local organizations (Cystic Fibrosis Foundation, Boomer Esiason Foundation) help Patrick in his fight against the disease.
Getting together with our loved ones will always be more important than the amount of money we raise.
Shannin and I are extremely grateful for everyone that takes a Saturday in the middle of the summer to support our cause. We are also mindful that we are not the only family dealing with a difficult situation in their lives. We try to provide an enjoyable experience for everyone who is willing to dedicate their time to help us out.
We will continue to organize this event as long as it takes to find a cure for this disease.
And we will continue to surround Patrick with as much love and support as we possibly can to help give him the strength to keep fighting.
To keep winning.
Last Saturday in July Golf Event to Beat Cystic Fibrosis